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Welcome Egg Lady(moved from 'pain relief Options
ceri44
#21 Posted : Monday, December 13, 2010 7:15:38 PM Quote
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Joined: 9/5/2010
Posts: 364
Location: mid glamorgan
HI Julie
So glad that your feeling better but try not to overdo it! Im exactly like you and as soon as I feel semi normal start rushing about trying to do everything.. But Ive read on here that you need to rest the first couple of days after a steroid jab so take it a bit easier! Hope the methotrexate works for you im on 20 mg injections but have awful sort of hangovery feeling the next day with headache tiredness and sickness so would really love to reduce it a bit.. anyway slow down a little bit take care
love Ceri xxx
Anthea1948
#22 Posted : Monday, December 13, 2010 7:46:48 PM Quote
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Joined: 12/3/2009
Posts: 327
Hi Julie

Sorry, I missed this in the first place, so a belated 'welcome' from me Smile

So glad the jab has improved things for you, long may it last. Yes, I think you're supposed to rest a bit after them but I didn't know that until I had my third one (several years down the line!) - they don't always tell you these things.

I'm only on a low dose of methotrexate (to supplement the Sulfasalazine and Celecobrix) but it sounds normal to increase it as you've described, that's what they did with me with the sulfa.

Anthea x
suzanne_p
#23 Posted : Monday, December 13, 2010 8:04:34 PM Quote
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Joined: 8/25/2010
Posts: 1,289
Location: Buckinghamshire
hi Julie,

glad you had your appointment and steroid injection, if they work they really do help. i had one a fortnight ago and it's really helped me this time.

as for the Methotrexate i think we all start slightly differently ... i started on 10mg and edged up to 15mg. after my review 3 months later i had to increase to 20mg, doing two weeks at 17.5mg first.

unfortunately it hasn't worked ( it has brought my inflammation down but not enough ) so i started on Hydroxy last week.

glad you are feeling better and hope the Methotrexate works well for you.

Suzanne x

AnnieB
#24 Posted : Tuesday, December 14, 2010 10:54:44 AM Quote
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Joined: 5/19/2010
Posts: 384
Hi Julie,

Its wonderful when you feel almost normal again, but do take care and don't overdo it.

So pleased for you.

Anne x
Egg Lady
#25 Posted : Tuesday, December 14, 2010 1:13:36 PM Quote
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Joined: 10/21/2010
Posts: 69
Location: North Devon
Confused LOL Scared Smile ThumbDown ThumpUp Sad

Hi all,

Yes must slow down. The above little smileys are a little indicator of the several emotions you can feel on this rollercoaster of RA. I was not told anything about having to taking things quietly after I had the injection. I was given a leaflet (as you do) with a list of possible side effects but nothing about taking it easy. However I must say I have been feeling really well, but having read some more stories on here about the Methotrexate I am apprehensive again. One minute I think it will be great so many people say it works well, then I read yesterday about someone being warned about using individual towels and not exposing their families to the drugs toxicity, and then others say it hasn't worked. It keeps me awake in the wee small hours wondering about the future....

Glad I am able to talk on here when I go away definitely feeling more smiley.

Thanks for the good advice

Speak soon

Julie
Good advice is best followed by the art of listening

Lorna-A
#26 Posted : Tuesday, December 14, 2010 1:37:31 PM Quote
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Joined: 3/8/2010
Posts: 914
Hi Julie,

So glad to hear you are feeling much better, the Steroids are a great help. I too remember or better still can't forget how bad my RA and more so my hands were at the start of my journey with RA. No one could have prepared me for the difference the steroid made to my life at that time.

The MTX is given to us all differently, but I believe it is they way forward in the South to introduce it and build up the doses and then introduce others if necessary. Good luck I hope it makes a great difference to you. I am on 15mg, I have been on the triple therapy, which means I took 3 different drugs introduced slowly at the same time and came down over the course of 3 years. I just take 2 drugs now, and the Folic Acid once a week 24 hours after my dose of MTX.

Have a lovely Christmas and a painless New Year. Lorna xx

Egg Lady
#27 Posted : Wednesday, December 15, 2010 5:51:19 PM Quote
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Joined: 10/21/2010
Posts: 69
Location: North Devon
Hi Lorna


It's so true about what everyone says. I know I have to slow down, not just physically, but mentally, and not keep trying to second guess what is going to happen and just try to take things as they come. I am still feeling well, but had a Swine Flu Jab and Pneumococcle (don't know how to spell it) yesterday and my arms woke me up aching like billy ho this morning. So I am just going to try and take each day as it comes. it's difficult because we have to plan ahead on the farm, lambing is coming up at the end of January and we have to get the sheds ready. I honestly don't think I shall be much use. Its good to hear you story and how things have worked out. I also read you story in the Newsletter. Thanks for your concerns.

I do hope you too have a peaceful and happy christmas. All the very best.

Julie x


Good advice is best followed by the art of listening

Lorna-A
#28 Posted : Friday, December 17, 2010 12:15:15 AM Quote
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Joined: 3/8/2010
Posts: 914
Hi Julie,

I know it's not easy, stopping me was a big challenge, maybe that's why I was hit so hard in the beginning. I now know what it's like to do absolutely nothing. I really appreciate being able to do anything at all, I hated being so incapacitated. Things will improve, you will see given time. I wish I lived nearer you I would willingly help you. I am always as positive as I can be, my doctor says I should have more pain than I do but I don't, other than little aches which go away quickly most of the time. So there must be something in being positive. I like to think so anyway. I admire everyone new coming on here as I was too scared to know what lay in store for me in the beginning.

The nurse at the hospital said to me today she would never forget how poorly I was when first diagnosed. I could hardly walk or move come to think of it. But even then I used to get my husband to help me onto a chair to finish the painting near the ceiling, we had been decorating at the time I was taken ill. I used to paint just 8ins one hand supporting my other arm as I had lost the use of it. I can laugh now but then it was so important to me that this RA did not beat me. I loved decorating and my husband had helped with the walls but I wanted to do near the ceiling so's not to smudge the ceiling. Smile It took ages but I knew I did it. and it was neat. Smile Keep in there you will improve too,. Sending you good wishes for Xmas and the New Year.

Lorna x
Egg Lady
#29 Posted : Sunday, December 19, 2010 8:51:02 PM Quote
Rank: Advanced Member


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Joined: 10/21/2010
Posts: 69
Location: North Devon
I feel like cow poo The steriod injection is wearing off, the old stiffness and pain is crawling back and I shall have to contact my RA nurse tomorrow. Are they supposed to last any longer. Oh I hate this! Mad

Thought for the day is an angry smiley an oxymoron?
Good advice is best followed by the art of listening

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